Reference no: EM132264352 , Length: 3000 Words

 

My health record Ethical data collection and management in Healthcare

The My Health Record System (formally known at the Personally Controlled Electronic Health Record) is the Australian Government’s electronic health record system and is currently being driven by the Australian Digital Health Agency (ADHA). The system contains key personal health information, including test results, summaries of hospital attendance, allergies, etc. My Health Record allows access to both the individual and any treating clinician, at any point of time, through an online portal.

Recently My Health Record has moved to an opt-out model rather than the original opt-in approach, i.e. members of the public have to choose not to have a My Health Record. Having all of the Australian population automatically receive a My Health Record has great clinical benefit, as the treating clinician has greater access than ever before to a patient’s medical history across all clinical settings (i.e. GPs, Pathology providers, Radiology Providers, Community care, hospital care, etc.)

There are, however, a number of ethical issues that need to be reviewed, particularly if health researchers would like to use the data (in a de-identified format) collected by the My Health Record system. This website provides some further information:

https://myhealthrecord.gov.au/internet/mhr/publishing.nsf/content/home

For the purpose of this assignment please respond to the following:

1.     Provide a brief description and background of My Health Record in its current format highlighting the key concerns that have slowed the rolled out of the initiative. Provide insight on three (3) potential ethical issues related to the secondary data use of My Health Record data.

2.     Place yourself in the role of a Hospital Health Information Manager and discuss what guidance you would offer to the clinicians within your organisation on their usage of My Health Record considering:

1.  
   • What key information may be stored in My Health Record and how that could effect clinical decision making.
   • Considerations around the currency, relevance and accuracy of that data.
   • What implications may exist if a client subsequently removes a document that was part of clinical decision making during a hospital attendance.

3.     Now place yourself in the role of a Health Information Manager consulting with ADHA (Australian Digital Health Agency)on My Health Record and provide advice on the following two (2) scenarios:

1.     A health researcher wants to access data from My Health Record that is effectively private health information that identifies the patient in question; state three (3) considerations that would need to be looked at before data was released.

2.     Recommend three (3) measures to ensure that de-identified data could not be re-identified at a later stage.

Please submit a 3,000 word report structured with an introduction setting out the report, a body responding to the above points and a conclusion that summarises the role of a Health Information Manager in relation to My Health Record. Try to use sources from the last five years, unless the topic relates to your discussion. Ensure to apply correct citation and referencing (APA 6^th ) standards.